I’m not going to sugarcoat it, Crohn’s disease and ulcerative colitis are both shitty diseases to have. Literally.
Alongside the horrendous symptoms and surgeries they cause, comes a sense of isolation.
You spend so long in the bathroom that days out become the odd day, a weekend away must be planned months in advance and any necessary car journey involves locating the nearest public toilet beforehand.
Friends start to think you’re bailing on them too often, you begin to feel guilty that you’ve looked at the same four walls for days – and even guiltier that you haven’t left them.
But you know what? Forget those ‘friends’ who make you feel guilty for having a disease that cannot be cured. Forget those ‘friends’ who sigh when you tell them you’re too sick to leave the house, too worried about being away from the bathroom for moments at a time.
Because they’re not friends. Friends are people who understand you and who support you in your time of need. They are people who want to be there for you, who will say, ‘Okay, let’s stay in tonight’, when they know full-well that you are in no shape to be out for the evening.
Of course, when you have an incurable disease, you think nobody will understand. That you have to put up with these non-‘friends’ because you have nobody else.