Katelyn Lambert of Sydney, Australia has a rare form of epilepsy called Dravet syndrome.
It is characterized by frequent and prolonged seizures, preventing normal development of the brain and body. Dravet syndrome manifests in infancy and is commonly managed with a variety of anti-seizure drugs—there is no established cure. Sadly,15-20% of children with Dravet syndrome do not reach the age of twenty.
Katelyn has experienced thousands of seizures since she was about 6 months old. Her parents were told the severity of the condition would cause almost constant pain and certain brain damage. Katelyn is now four years old.
Seeing his daughter writhing in pain and knowing what her future held, Katelyn’s father Michael embarked on his own research. He read about another little girl with Dravet in the United States, Charlotte Figi, whose seizures were effectively controlled with the use of cannabis oil. One strain of child-friendly cannabis was even named after her: Charlotte’s Web.