6 Things I’ve Learned Living With Lupus

1. Realize your privileges, and take advantage of them

I’ve never been an “outdoorsy” girl. I preferred the comfort of couches and air conditioning to the outside. But now that my heat sensitivity and photosensitivity can spike my fever within 5 minutes and I’ve been advised to stay indoors from 10am to 4pm, all I want is to breathe fresh air and feel the sun on my skin. I have the strangest yearning to go hang out at the park. I cry regularly because I want to visit the beach. I’ve never been into sports or exercising, but now that my lungs are becoming more inflamed I have a new desire to run a 5K.

Flickr / lauren rushing

I had no idea what an amazing gift I had of the entire world at my feet. I’m not counting myself out yet for travel and exploration, but I wish I had known how much I would wish that I had gotten up and walked outside back when I could whenever I wanted.

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